Third Symposium on BPAN in France

Autour du BPAN is a dynamic association fighting against a rare and neurodegenerative desease called BPAN (Beta Propeller Protein Associated Neurodegeneration). Its mission : supporting the medical research, the patients and their family. Though, the association is thrilled to announce the Third Symposium in France dedicated to BPAN ⁽¹⁾. This event, organised by the University of Bordeaux and our organization will take place on 17th/18th May 2024 in Bordeaux.

This year, 75,000 Euros invests in research

In just over 5 years of existence, Autour du BPAN has supported many research projects in France. The University of Bordeaux, through Professor Jean-Paul Lasserre's project on "baker's yeast" ⁽²⁾ , and the The creation of a patient cell database will have benefited from funding of 75,000 euros by the association. It was therefore natural that the University of Bordeaux and the association Autour du BPAN join forces to offer you this Symposium.

From the beginning to the Symposium…

Since its inception, the association has organized meetings with the various researchers it finances. This allows these scientists to meet and exchange their practices.
These exchanges could thus be facilitated as during :

- of the first "Colloquium" organized in Ouches in September 2019 ⁽³⁾,
- the First Symposium on BPAN Disease in Lyon in 2022 in partnership with ENS de Lyon,
- the Second Symposium on BPAN Disease in Bordeaux in 2023 in partnership with the University of Bordeaux,

or during the "Family Weekends" :

- the first edition in September 2020 ⁽⁴⁾,
- the second edition in September 2021 ⁽⁵⁾,
- the third edition in September 2022 ⁽⁶⁾,
- the fourth edition in October 2023 ⁽⁷⁾,

The interest of these meetings always remains the same and multiple. On the one hand, they allow researchers to create a dynamic, a network. Thus some of them (who did not know each other before the invitation of the association), now collaborate together in the service of the BPAN. This is quite extraordinary! On the other hand, the arrival of researchers during our events allows families to present their work and their progress thanks to the funding of the association. Finally, it allows researchers to leave their laboratory and be able to meet sick children and young adults directly, observe their symptoms and behaviors and thus have the opportunity to realize family problems. We love these moments filled with emotions and sharing.

The advantage of this Symposium ?

This international Symposium will gather scientific experts from different countries (geneticists, neuropediatricians, neurologists…). Their new researches in the field will be presented. Then the researchers could exchange and for some just get acquainted, which is pretty rewarding because it could lead to possible collaborations, ideas and processes swap, and going out of the borders to progress in research.

For whom is the Symposium intended ?

This Symposium is open to everyone.

Friday 17th May is a day intended for the scientists and the medical teams… The language will be exclusively English. The exchanges will be only medecal and scientific ones.

Saturday 18th May will be more intented for the families, with a will of vulgarisation (to make explanations easier Tu understand) from the Friday exchanges made by some researchers.

Mark your calendars!

For more information and to register, click on the link below : https://www.autourdubpan.fr/symposium2024/

⁽¹⁾ This is the third symposium in France on BPAN. The 1st symposium had taken place the previous year in Lyon with ENS. and the 2nd took place in May 2023 in Bordeaux with the University of Bordeaux

⁽²⁾ October 29, 2020 - Article An active molecule identified in yeast!

⁽³⁾ September 28th, 2019 - Around BPAN research

⁽⁴⁾ September 26th, 2020 - Weekend families, researchers and volunteers together!

⁽⁵⁾ September 2021 - Second edition of the Family Weekend!

⁽⁶⁾ September 2022 - Third edition of the Family Weekend!

⁽⁷⁾ October 2023 - Fourth edition of the Family Weekend!

PARTNERS OF THIS EVENT

Autour du BPAN - 21/02/09